2012 ©
             Publication
Journal Publication
Research Title Extend the Family Quality of Life Concept for Thai Families Who Have Children with Developmental Disabilities 
Date of Distribution 26 May 2014 
Conference
     Title of the Conference the 35th International Association for Human Caring Conference, SIG on Transcultural Nursing and Caring,6th Annual Conference of Society of Cultural Nursing Studies  
     Organiser Kobe University Graduate School of Health Sciences 
     Conference Place Kyoto International Conference Center (Main Hall and others) 
     Province/State Kyoto, Japan 
     Conference Date 24 May 2014 
     To 28 May 2014 
Proceeding Paper
     Volume the International Journal for Human Caring 18 
     Issue
     Page 38 
     Editors/edition/publisher ManeeratThirakorn, Jongudomkarn Darunee, Kheawyoo Jiraporn 
     Abstract Background:While children with disability have received more attention over the last 20 years inThailandthey still experience health inequalities. Little is known about family quality of life (FQOL)of families who have a child with a developmental disability (DD). Current disability study mainly focus on physical disabilities. Thus, the present study assessed the perceptions of Thai families who have a child with a DD. AIMS:To capture the voices and opinions of families how living with a child with DDaffects their FQOL METHODS:A total of 31 Thai families with a child with DD such as cerebral palsy or autism (age 2 to 22 years) were included into the study. We used focus groups for data collection. A designated scribe took verbatim notes, which were later subject to qualitative content and thematic analyses. RESULTS:We identified five significant themes related to FQOL:1) family interaction, 2) parenting, 3) physical and material wellbeing, 4) emotional wellbeing, and 5) disability-related support. Derived from the study findings allowed the emergence of theCISNA model which includes five new sub-domains of FQOL that reflects the experiences of our study families. CISNA stands for: Cooperation and communication in family, Information for fostering the child’s independence, Safety around the house and sufficiency in financial recourses, Network for social support, and Advocacy for education and upbringing. Implication:Our findings will allow us in the future to develop animproved tool for FQOL assessment, specifically for Thai families with a child withDD. In the future, this tool will be helpful for communities to prioritize their concerns, practical implications, and health policies for children with DDs and their families.  
Author
527060002-6 Mrs. THIRAKORN MANEERAT [Main Author]
Nursing Doctoral Degree

Peer Review Status ไม่มีผู้ประเมินอิสระ 
Level of Conference นานาชาติ 
Type of Proceeding Abstract 
Type of Presentation Oral 
Part of thesis true 
Presentation awarding false 
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